deepundergroundpoetry.com

microdeletion

I have a daughter as small as she is she does struggle daily
she has also a sister named Kaylee
she was born with a disability
shes needs stability

I have notice something may have been off since she was six months old
but I will not fold
she couldn't walk till she was almost two her muscle wasn't strong
I and her dad are not together we couldn't get along

I had taken her to her neurologist and that was she was diagnosed
I've always been there for her the most
she has microdeletion syndrome it's rare
I felt so bare

basically a part of her chromosomes are deleted
so after all the test are completed
she began therapy she likes everyone else
she will not be left on a shelf

she has trouble eating on her own
so I help her she has grown
she has some sensory issues
sometimes I need tissues

she doesn't like to be touched in her face hair or arms and hands
she can now walk and stand
anything with her hair it's like a fight
but she is also so bright

clipping her nails she hates it she will yell
her nickname is belle
when she cant calm down she has a weighted blanket to feel better
I don't wish this on anyone never

she has autism ADHD insomnia and also a learning disability
I believe she has a capability
there is a chance later on in life she can have schizophrenia
hopefully can control the mania

her father has it
he sometimes throws a fit
even if she may have it I won't give up on her I will help her
out future is bright but a blur
Written by ravibabygirl (babygirlprincess)
Published
All writing remains the property of the author. Don't use it for any purpose without their permission.
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