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Image for the poem The Butterfly Fluttered In.

The Butterfly Fluttered In.

 
Six months of

the ache to sleep
the ache to wake
the ache to stand
the ache to see

and the ache

you see
I know my ABC
and my one, two, three
I know my C#
Python and even Raspberry

so when the brain
can't acces solid state C:
it's a relentless ache

I'm in the Pharmacy
waiting for
"I can't remember what?"

the woman behind me says
"don't you find the sweating part
the worst?"

Frankly, I was about to burst
I didn't have that!

Untill that moment

from then on, all I could see
was sweat
all I could feel
was sweat
all I could smell, was sweat

Took to the shower
daily, sometimes
twice
sometimes as many as three

I was determined to wash it off
relentlessly
While drying
reflected in the mirror
was the rash
- gone purple
accross my chest

Now I'm gonna make you cry
because
it's shaped perfectly
like a butterfly

I know she's crawling upward
toward the sky
she'll rest when she reaches
my smiling face
slowly does it,
it's not a race
but like we know
this butterfly
well, she aint shy!

When next you see
a human with SLE
note that thier butterfly
gets washed regularly

(I'm NOT saying that, just for poetry!)

-x-
 
RevolutionAL
Written by RevolutionAL (Alistair Plint)
Published
Author's Note
In Celebration of life. No copyright expressed for the purpose of Lupus Education!
World Lupus day is on the 10th May 2019. In support of sufferers, I'll be posting my personal experiences with...
In Celebration of life. No copyright expressed for the purpose of Lupus Education!
World Lupus day is on the 10th May 2019. In support of sufferers, I'll be posting my personal experiences with the incurable SLE disease. This is my 2nd contribution, posted in the days leading to #LupusDay2019
All writing remains the property of the author. Don't use it for any purpose without their permission.
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